Marianjoy Library

CHI: Spinal Cord Injury

The following Web sites are listed in alphabetical, NOT ranked, order.  Clicking on any of the links below will open the professional site in a new window.

Christopher Reeve Paralysis Foundation (CRPF)
The CRPF is committed to finding treatments and cures for paralysis caused by spinal cord injury and other neurological disorders, and improving the quality of life for people with disabilities. This site has general information for patients, family, and caregivers, as well as in-depth information for physicians and scientists. 

National Institute of Neurological Disorders and Stroke (NINDS)
NINDS (part of the National Institutes of Health) is a leading supporter of biomedical research on disorders of the brain and nervous system. In addition to a wide variety of SCI topics, the site includes a link to ClinicalTrials.gov, which seeks spinal cord injury volunteers for research studies. 

National Rehabilitation Information Center
This site has over 70,000 documents and journal articles for the general public and researchers. The searchable databases include: REHABDATA, with abstracts of books, reports, articles, and A/V materials;  The NARIC Knowledgebase, representing 25 years of collecting resources for information and referral; National Institute on Disability and Rehabilitation (NIDRR) Project Database, with data on every project funded by NIDRR  from 1993 to the present. 

National Spinal Cord Injury Association (NSCIA)
The NSCIA is the nation's oldest and largest civilian organization dedicated to improving the quality of life for people living with the results of spinal cord injury and disease (SCI/D) and their families. The free membership includes online access to current and past issues of the quarterly publication SCI Life

New Mobility.com
Newmobility.com is a leading online resource for anyone with an interest in disability issues, culture, and lifestyle. The web site includes access to current and past issues of the monthly magazine New Mobility, as well as a keyword search of New Mobility articles. 

Paralyzed Veterans of America (PVA)
The PVA, a congressionally chartered veteran’s service organization, has developed a unique expertise on a wide variety of issues involving the special needs of veterans with spinal cord injury or dysfunction. The web site contains numerous resources including PVA membership, news items, research, education, government legislation, legal resources, and electronic copies of PVA publications. 

SCI Information Pages
This site was originally created by a C5/6 Quadriplegic as his own personal resource, but as it grew he decided to share it with others.  It is intended to be a "best of the web" resource for those living with a spinal cord injury or other disabling injuries or diseases of the spine. 

Spinal Cord Injury Association of Illinois
The Spinal Cord Injury Association of Illinois (formerly NSCIA, Illinois Chapter) is an information and support resource for people paralyzed by spinal cord injury and their families, as well as the health care professionals who serve the SCI community.   

Spinal Cord Injury Information Network
The Spinal Cord Injury Information Network is sponsored by the Model SCI System at the University of Alabama. It offers educational and research information relevant to persons with spinal cord injuries, their families, and others of interest.  

Spinal Cord Injury Network International (SCINI)
SCINI is dedicated to facilitating access to health care for SCI patients and families.  Information and referral services are available through its 1-800-548-CORD number.  A resource library contains over 500 books, 50 journals and newsletters, and 200 clippings files. There is also a Video Lending Library with over 200 videos, available on loan fee of charge.  

Spinal Cord Injury Resource Center
This site was created by and maintained by a patient who wanted to consolidate SCI information scattered across the Internet. In addition to a vast amount of SCI topics, the site includes a chat room, message boards and a classifieds for-sale/wanted section.

 

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