PedLinks

Below is a listing of Pediatric Web sites selected by the library staff. They are listed in alphabetical, NOT ranked, order.  Clicking on any of the links below will open the professional site in a new window.

Education

• Arc of  Illinois Family to Family Health Information and Education Center Funded by the U.S. Health Resources and Services Administration (HRSA), Arc of Illinois.is a free service for families of children and youth with special needs,
• The Individuals with Disabilities Education Act (IDEA)
• How the ARRA Impacts Special Education and Early Intervention The Council for Exceptional Children’s Questions & Answers on American Recovery and Reinvestment Act (ARRA).
• National Dissemination Center for Children with Disabilities  (NICHY)

NICHCY provides programs and services for infants, children, and youth with disabilities with a special focus on early intervention, education, and other

• Office of Special Education Programs (OSEP) Office of Special Education and Rehabilitative Services
  
  

Assistive Technology

• The Special Child Exchange   Helping families locate necessary medical supplies and/or durable medical equipment
• Exchanging Special Needs Equipment and Supplies
• Infinitec, Inc.: infinite potential through technology is an assistive technology program of the United Cerebral Palsy Association of Greater Chicago.
• Assistive Technology Institute (ATI) provides therapists, educators, parents, and persons with disabilities the opportunity to learn about and interact with assistive technology, its manufacturers, its users, and others with similar needs.

Legal

• Your Child's Rights
  A Child's Rights for Public Education, Early Intervention Services (EI), Special Education Services Extended School Year (ESY) Services, How to Get Services Started for a child?
  
• Disability.Gov: Parent Resources Contains links to information resources specifically for parents including early intervention services, transition supports and detailed information regarding rights and the laws that protect students with disabilities.
  

Health Literacy & Disability

• Welcome to the Center for Literacy and Disability Studies

Insurance

• Illinois Pre-Existing Condition Insurance Plan (IPXP)  Illinois Department of Insurance
• Illinois Department of Insurance
• Health Insurance Reform Information Center is a forum for information on the recent national health insurance reform and its effects on Illinois.
• Arc of  Illinois Family to Family Health Information and Education Center Funded by the U.S. Health Resources and Services Administration (HRSA), Arc of Illinois.is a free service for families of children and youth with special needs,
  
  
  

Transition

• Family to Family: Youth Transition Resources
  

Other Helpful Links

• Care.com

Find babysitters, nannies, tutors, pet sitters & more! Mom-reviewed caregivers, Background checks, Access to references

• National Disability Agencies and Related Resources The Consortium for Citizens with Disabilities (CCD)
  
  
  
  
  

Disability Statistics

• Disability Statistics  Cornell University & NIDRR.

Online Resource for U.S. Disability Statistics. The DisabilityStatistics.org web site condenses several data sources into a single, user-friendly, accessible, Internet resource. It also provides essential background information on key issues related to disability statistics. Registration is FREE.

• The Disability Statistics Center The University of California, San Frncisco

Produces and disseminates policy-relevant statistical information on the demographics and status of people with disabilities in American society.

• Disability Main Page (U. S. Census Bureau)
  This site includes data from the Survey of Income and Program Participation,(including statistics on employment and disability), work disability data from the March Current Population Survey, data from the 1990 Census on the characteristics of persons with disabilities by state, metropolitan area, and county, and model-based estimates of the prevalence of specific disabilities for states and counties. Also included are other Census Bureau sites with disability data, and related Internet sites.

• State Data Info
  Make customized charts of state, national, and individual disability data.

Online Magazines

• Complex Child A monthly online magazine written by parents of children with special healthcare needs and disabilities.

ADHD

Caring for a Child with ADHD or ADD

Advice for families and caregivers

Autism

• ACC: Autism Community Connection Connecting Illinois resources, family, community and hope
• Assistive Technology Autism Speaks

• Southwest Autism Research & Resource Center’s (SARRC) Mission is to advance research and provide a lifetime of support for individuals with autism and their families
• Life Journey Through Autism: A Parent’s Guide to Assessment The guide is intended to provide you with a practical understanding of the assessment process and is available from SARRC.
• Life Journey Through Autism: A Guide for Transition to Adulthood  This guide is designed to give parents, teachers, and other education professionals an introduction to the transition to adulthood process and is available from SARRC.
• Autism Spectrum Disorders - Primer for Parents & Educators
  Information from the National Association of School Psychologists with basic facts about Autism Spectrum Disorders and effective intervention strategies. This link opens a PDF document.
  
  

Cerebral Palsy

Other Conditions

• Spina Bifida Association (SBA)

Through its network of chapters, SBA has a presence in more than 125 communities nationwide and touches thousands of people each year.

• National Resource Center on Spina Bifida (NRC)

The National Resource Center on Spina Bifida (NRC) provides high quality, confidential information and referral services. Every year the NRC responds to as many as 10,000 questions about health care, education, employment, benefits, and more.

Need help? Stop by the library, call us at (630) 909-7090 or e-mail the Library Staff.